Gluten-Free Guidebook

I love it when people tell me about their great gluten-free dining experiences. One reader, whose husband has celiac disease, contacted me about their dinner at Rick Bayless’s Topolobampo restaurant in Chicago. They were deeply impressed by the thoughtfulness of the staff. It was clear from the start of their meal, when the restaurant’s manager came to their table to talk, that the restaurant took gluten-free dining seriously. Because the chef was concerned about cross-contamination (apparently the chilies in some sauces were flash-fried in a deep fryer, and could have been exposed to gluten particles), the two gluten-free dishes that made their way to the table were variations of menu items. Topolobampo’s sommelier also did a fine job pairing wines with the special dishes. The reader wrote:

We travel and eat out extensively and have never come across this level of dedication and exemplary service. The manager kept apologizing that our meal was going to take a little longer than normal. It was unreal and did not break the bank either…

Another reader wrote to tell me about Leaf Cuisine, a Los Angeles restaurant that is virtually the only place where she will dine out (in addition to being gluten intolerant, she has allergies to casein and corn). Leaf Cuisine is a raw-food restaurant, meaning that none of the food is heated above 110 degrees Fahrenheit. All of the menu items are vegan and reasonably priced. The restaurant also sells some of its creations in local stores (including several Whole Foods outlets in Los Angeles) and offers courses in raw-food preparation.

One reader told me about a website created by her daughter. It’s a wonderful resource called Gluten-Free Ontario, and if you’re traveling anywhere in the province, take a look at it. The long list of cities represented includes Toronto, Ottawa, Hamilton, Barrie, London, and Sault Sainte Marie. A lot of work has gone into the site, and the results will help many people make decisions about dining out.

Finally, I wanted to alert U.S. readers that a couple of medical centers are offering free screening for celiac disease. This past Saturday, the West Virginia Gluten Intolerance Group and the Department of Pediatrics at the Joan C. Edwards School of Medicine at Marshall University worked with the Cabell-Huntington Hospital to provide free blood screening (I wish I’d heard about it earlier, and I hope that they will repeat this event in future). The University of Chicago Celiac Disease Center offers an annual day of free screening; the next one will be on October 18, 2008. That may sound like a long way off, but participants need to pre-register by calling [tel] 773-702-7593 after August 15, 2008. For a calendar of events of interest to the gluten-intolerant, including free blood screenings, check out the calendar at Gluten-Free Forum. For a list of the Gluten Intolerance Group’s branches and partner offices, click here.

Celiac disease and gluten intolerance have been in the news lately (May is Celiac Awareness Month, after all). I’ve been pleasantly surprised to find mainstream media coverage of the subject. ABC-7 in Chicago featured a story, “More Gluten-Free Restaurants in the Chicago Area,” that is still up on the channel’s website. The long list of restaurants, bakeries, and shops includes Adobo Grill, Vinci Restaurant, Swirlz Cupcakes, and Venus. It also includes a link to the Celiac Chicago blog.

The Boston Globe ran a series of articles about gluten intolerance, including “Gluten Free Dining Out.” This list includes Elephant Walk, Rendezvous, and Rocca, and is still available online (you may need to sign up to use the Boston Globe’s website, but registration is free).

Vanessa Maltin, the Director of Programming and Communications at the National Foundation for Celiac Awareness and the author of Beyond Rice Cakes, e-mailed me after our interview to let me know about another restaurant she found in Florida. Vanessa wrote:

I went to dinner tonight in Jupiter, Florida, at Masa’s Sagami. It was incredible. It is a hibachi-style Japanese restaurant and the chef who cooked at our table was a dream come true. I brought my own bottle of Tamari sauce and he was so careful to make my food in a clean area of the cook top and even made me a special batch of fried rice that was gluten-free. He didn’t even flinch when I asked. He simply called for the kitchen to bring him fresh ingredients to cook mine with. it was awesome and made for a fabulous night out!
(Masa’s Sagami [address] 1200 Town Center Drive, Jupiter, FL 33458 [tel] 561-799-6266 [web] www.masassagami.com)

Vanessa also mentioned that the new Nationals Park in Washington D.C. has a Noah’s Pretzels with gluten-free pretzels and Redbridge, the celiac-safe beer brewed by Anheuser-Busch. Even if you’re not a baseball fan, you may want to take in a game if you find yourself in D.C. this summer.

One of my favorite bloggers, Allergic Girl, was featured in New York magazine (“Ask an Allergic”) with her tips for successful allergy-free dining. Also, my friend and Frommer’s colleague Bob Fisher, who has a life-threatening allergy to peanuts and green peas, wrote an article called “Travel Health & Safety: 7 Food Allergy Tips” for Frommers.com. It ran a few months ago, but it’s still up on the site and it’s a piece everyone should read.

Vanessa Maltin is an inspiring person to talk to. She’s the Director of Programming and Communications at the National Foundation for Celiac Awareness, and also the author of Beyond Rice Cakes: A Young Person’s Guide to Cooking, Eating & Living Gluten-Free. She is currently at work on a second book, which explores how to cook Latin, Italian, and Asian cuisines for a gluten-free diet. Take a look at Vanessa’s blog, Beyond Rice Cakes, for more information (the book will be published by Wiley in the fall of 2009). Diagnosed with celiac disease in 2003, Vanessa has plenty of practice traveling gluten-free, and she shared her experiences and advice with me in an interview last week.

How often do you travel? I travel for work at least once a month, and usually a lot more. I just got back from Bentonville, in northwest Arkansas, which was great. They had all of the chains with gluten-free menus there, like Red Robin, P.F. Chang’s, and Mama Fu’s.

Where have you traveled since being diagnosed with celiac disease? I’ve been all over the country. So far this year I’ve been to New York, San Francisco, St. Louis, Boston, Philadelphia, Hagerstown, MD, Lynchburg, VA, and Florida. Internationally, since I was diagnosed, I’ve been to Ireland, Italy, and Prague — all places where I ate like a queen!

What foods or snacks do you pack when traveling? I always bring bags of nuts with me. I also take Pure Fit bars and Zone bars — most of them are gluten-free. Sometimes I’ll bring gluten-free Thai Kitchen soup mixes, or small packets of peanut butter, which I’ll eat with an apple.

What other things do you bring with you? My iPod and my laptop! I also take Triumph Dining cards with me wherever I go.

How do you prepare for a trip? Since most of my travel is for work, I try to get a really detailed itinerary, because you have to plan ahead. It’s not like I can stop and grab a Big Mac. Sometimes I’ll look at the local celiac support groups and see what they recommend. Normally, when traveling for work, I’m eating with non-celiacs, so I tell people I’m meeting what I can and can’t eat. I have a lot of meetings where an office provides a catered meal, so it’s really important to let them know in advance that they need to have gluten-free options.

Any favorite restaurants? I absolutely love Bistango in New York City. In D.C., my favorites are Café Atlántico, where I helped the chef develop the Latin-fusion gluten-free menu, and Zaytinya, a Mediterranean restaurant. In San Francisco, I go to Max’s Opera Café, which doesn’t have a gluten-free menu but is very accommodating. I love Brick and Solstice, which are both in San Francisco, too. In Palm Beach Gardens, Florida, I like the Yard House, and I just went to a place called Pizza Fusion, which has gourmet gluten-free pizzas. My standby place, wherever I go across the country, is Chipotle.

Any favorite hotels? The Hyatt hotels are amazing.

What’s the most memorable city you’ve visited? Bruges in Belgium. Every other store there was a chocolate shop. I had a shrimp and goat cheese salad there that I’m still craving. It was such an incredible place, and the only thing I couldn’t eat there were the croissants.

What’s your dream destination? The Amalfi Coast in Italy. I’ve read about cooking trips there where you stay in a villa for seven days and just cook every day. I’d love that.

Do you have any other advice for gluten-intolerant travelers? Keep an open mind about traveling, because it really can be done!

Photograph provided courtesy of Vanessa Maltin.

In the four years since I was diagnosed with celiac disease, I’ve traveled to six countries where I didn’t speak the language. Asking the right questions about food preparation when you, your server and your chef all speak the same tongue can be challenging. When you’re dealing with translation issues, it makes the entire process that much tougher. Eating at a restaurant is always an exercise in trust; for the gluten-intolerant, it feels especially risky. I plan ahead by printing celiac disease translation cards before leaving home. Here’s how to do it — for free.

1. Start by checking for free celiac information cards from national or regional associations. Both the Czech Coeliac Society and the Swiss Celiac Society offer such cards online. For other countries, take a look at the “International Celiac Societies” listed on the Resources page at Celiac Handbook. Only a few of them provide a card, but hopefully the number will increase. Print several copies so you won’t mind if a card gets damaged in a restaurant kitchen.
2. The Celiac Travel website provides an impressive selection of cards in many languages (currently there are 38, including Arabic, Japanese, Italian, Portuguese, Russian, and Urdu). I’ve used both the Hungarian and Spanish cards from this site and found that they worked extremely well. Given that several companies are charging money for celiac translation cards, I have to tip my hat to Roger and Lyndsay, who run this site, because they’re providing these detailed cards for free (a small donation is requested but not required).
3. Gluten-Free Passport provides free cards online in French, German, Greek, Italian, Spanish, and Russian. I like these because you have the English and the translated language side by side, though of course that makes these cards larger to print.
4. There are several sites, including Clan Thompson’s Celiac Site and the Finnish Celiac Society, that provide or link to free information about celiac disease in different languages. These descriptions aren’t detailed, but they certainly get the point across in languages including Polish and Thai.
5. If possible, learn a few words or phrases in the local language before you go on your trip. Knowing how to say “Tengo la enfermedad celiaca; No puedo comer harina o trigo” (I have celiac disease; I can’t eat flour or wheat) made my travels to Spain and Chile easier, because awareness of celiac disease was widespread. But I have to admit that I never managed this in Hungarian.

Has anyone bought the celiac translation cards from Triumph Dining, or paid for gluten intolerance or food allergy translation at Allergy Translation? I haven’t tried either of these options, but I’d love to hear your comments about them.

On March 30th, 2008, traveling between the United States and Europe may get easier… or at least more competitive. That’s the day that the new transatlantic flight pact (commonly known as “open skies”) goes into effect, allowing airlines to fly between any two airports in the regions. In the past, a British Airways flight en route to New York had to originate in the UK. Now, it could originate in Paris or Prague. Open skies is being hailed as a significant change in the travel industry — though charges to compensate for increasing fuel prices may mean that the price of a ticket won’t drop that much.

I know that no one chooses an airline based on its willingness to offer gluten-free meals, but if the amount of competition for your travel dollars increases, this is an issue to keep in mind. When I flew to Lima, Peru, last fall on American Airlines, I was dismayed to discover that there was no gluten-free meal for me on the flight there or back. Both my husband and I had called American to confirm the request, and I’d even mentioned it to the gate agent in New York; she checked and found it in the system. However, once I was on the plane, the flight attendant informed me that no gluten-free meals were available on the flight, period. This was because American Airlines had defined it as a “short” international flight, since it lasted only six hours (I had flown on American from New York to Miami, where I caught my connecting flight to Lima). The flight attendant was as helpful as she could be — she got me three mini-salads, which were naturally gluten-free — but there wasn’t much to be done (this is why I always have a celiac-safe protein bar in my bag).

This was a stark contrast with my flight to Santiago, Chile, a year before. That time I flew on LAN, which quickly became my favorite airline. Say what you will about how unpleasant it is to fly these days, but LAN’s friendly, helpful staff made it a pleasure. Not only did I get some surprisingly tasty gluten-free meals on my flights to and from Chile, but even the snacks were gluten-free. (I’ve had positive experiences with gluten-free meals on British Airways and Swiss International Air Lines, too, but this was the first time that even the snacks were safe for me.)

I just checked with American Airlines, and they are offering gluten-free meals on all of their flights to Europe. This makes sense, since the competition is about to get stiffer. But, in case you’re flying to Peru anytime soon, take note — there are still no gluten-free meals on American’s flights to Lima, but there are on LAN’s.

It hit me a few months ago, while I was planning a trip to Peru, that much of my research is wasted after I return home. I’m a freelance travel writer, so my trips usually translate into magazine articles or guidebooks. But since 2004, when I was diagnosed with celiac disease, I’ve devoted entire days to figuring out how to follow a gluten-free diet while on the road.

The first trips I took after my diagnosis saw me lugging an embarrassing number of gluten-free protein bars abroad. I assumed that I’d never be able to communicate my dietary needs or ask the right questions about unfamiliar dishes (it’s hard enough in English – how could I do it in Hungarian?). While I still pack some celiac-safe snacks, I’ve found resources that take the worry out of travel (well, dietary worries, anyway), and allow me to savor a destination.

Since my diagnosis, I’ve visited Peru, Easter Island, Chile, the Czech Republic, Hungary, Switzerland, and Spain. I travel to Canada on a regular basis, and I’m often on the road in the US as well. I want to let others with celiac disease or gluten intolerance know about the discoveries – restaurants, shops, products, hotels, tour operators – that have made traveling a pleasure (or, occasionally, a pain). I’ve been writing guidebooks for a decade, and I know that the best ones are like trusted travel companions with an insider knowledge of local secrets. I’ve got plenty of secrets to share.

There are many wonderful websites that help people adjust to – and enjoy – a gluten-free diet. Some feature recipes and luscious photos featuring the results. You’re not going to find that here (unless I can convince some of my friends to share the secrets behind the fantastic gluten-free treats they’ve made for me). Instead, you’ll find information that every gluten-adverse globetrotter should have.

I want to hear about the places you’ve discovered, too. You can reach me at glutenfreeguidebook@gmail.com.